La participación de los pacientes con diabetes en grupos de apoyo online: implicaciones físicas y emocionales e impacto en la comunicación doctor-paciente

• Autores: Noelia Herrero
• Localización: IC Revista Científica de Información y Comunicación, ISSN 1696-2508, Nº. 18, 2021 (Ejemplar dedicado a: Imágenes, imaginarios y nuevas narrativas en contextos de crisis), págs. 327-349
• Idioma: español
• DOI: 10.12795/ic.2021.i18.17
• Títulos paralelos:
  • The participation of patients with diabetes in online support groups: Physical and emotional implications, and impact on the doctor-patient communication
• Enlaces
  • Texto completo
• Resumen
  • español

    Los pacientes con diabetes sienten la necesidad de apoyo social, tanto emocional como informativo, que pueden encontrar en redes sociales y grupos de apoyo online. Este artículo adopta un enfoque comunicativo basado en una revisión de la literatura existente para tratar de abordar los problemas que dicha participación puede ocasionar en lo que respecta al bienestar físico y emocional de las personas que padecen diabetes.

  • English

    Patients with diabetes feel the need for social support, both emotional and informational, which can be found in social networks and online support groups. This article takes a communicative approach based on a review of the existing literature to try and address the problems that said participation can cause in regards to the physical and emotional well-being of people suffering from diabetes.

• Referencias bibliográficas
  • Aggarwal, C. C. (2011). An introduction to social network data analytics. Social network data analytics. Springer. https://doi.org/10.1007/978-1-4419-8462-3_1
  • Al Mamun, M., Ibrahim, H. M., & Turin, T. C. (2015). Peer Reviewed: Social Media in Communicating Health Information: An Analysis of Facebook...
  • Anderson, R. J., Freedland, K. E., Clouse, R. E., & Lustman, P. J. (2001). The prevalence of comorbid depression in adults with diabetes:...
  • Andreassen, H. K., Trondsen, M., Kummervold, P. E., Gammon, D., & Hjortdahl, P. (2006). Patients who use e-mediated communication with...
  • Baddeley, M. (2010). Herding, social influence and economic decision-making: socio-psychological and neuroscientific analyses. Philosophical...
  • Bakshy, E., Rosenn, I., Marlow, C., & Adamic, L. (2012). The role of social networks in information diffusion. Proceedings of the 21st...
  • Ben-Sira, Z. (1985). Potency: a stress-buffering link in the coping stress- disease relations-hip. Soc Sci Med, 21(4). https://doi.org/10.1016/0277-9536(85)90220-5
  • Bevan, A. (2017). T1D exchange: An online community for people touched by type 1 diabetes. AADE in Practice, 5(4), 44–46. https://doi.org/10.1177/2325160317706965
  • Boneva, B. S., Quinn, A., Kraut, R., Kiesler, S., & Shklovski, I. (2006). Teenage communication in the instant messaging era. In, 201–218....
  • Brédart, A., Bouleuc, C., & Dolbeault, S. (2005). Doctor-patient communication and satisfaction with care in oncology. Current Opinion...
  • Brinkman, W. B., Geraghty, L., Bp, K., Jc, G. del R., Ja, D., & T G. (2007). Effect of multisource feedback on resident communication...
  • Campan, A., Cuzzocrea, A., & Truta, T. M. (2017). Fighting fake news spread in online social networks: Actual trends and future research...
  • Carlsson, T., Landqvist, M., & Mattsson, E. (2016). Communication of support and critique in Swedish virtual community threads about prenatal...
  • Centers for Disease Control and Prevention. (2011). National diabetes fact sheet: national estimates and general information on diabetes and...
  • Chen, L., Magliano, D. J., & Zimmet, P. Z. (2012). The worldwide epidemiology of type 2 diabetes mellitus—present and future perspectives....
  • Christakis, N. A., & Fowler, J. H. (2009). Connected: The Surprising Power of Our Social Networks and How They Shape Our Lives. Little,...
  • Clark, M. (2008). Diabetes self-management education: a review of published studies. Primary Care Diabetes, 2(3), 113–120. https://doi.org/10.1016/j.pcd.2008.04.004
  • Costanza, R. S., Derlega, V. J., & Winstead, B. A. (1988). Positive and negative forms of social support: Effects of conversational topics...
  • Duffy, F. D., Gordon, G. H., Whelan, G., Cole-Kelly, K., Frankel, R., Buffone, N., Lofton, S., Wallace, M., Goode, L., Langdon, L., &...
  • Eichhorn, K. C. (2008). Soliciting and providing social support over the internet: An investigation of online eating disorder support groups....
  • Eysenbach, G., & Jadad, A. R. (2001). Evidence-based patient choice and consumer health informatics in the Internet age. Journal of Medical...
  • Facebook, A. (2019, October 15). Company info. Newsroom.Fb.Com. Retrieved from: http://newsroom.fb.com/company-info/
  • Facebook. (2021). Facebook.Com. Retrieved from: https://www.facebook.com/notes/10160197330146729/
  • Fan, T., Koro, C. E., Fedder, D. O., & Bowlin, S. J. (2006). Ethnic disparities and trends in glycemic control among adults with type...
  • Festinger, L. (1957). A Theory of Cognitive Dissonance. Stanford University Press.
  • Ford, M. E., Tilley, B. C., & McDonald, P. E. (1998). Social support among African–American adults with diabetes. Journal of the National...
  • Fox, S. (2011). Peer-to-Peer Healthcare: Many People–Especially Those Living with Chronic or Rare Diseases–Use Online Connections to Supplement...
  • Funnell, M. M., & Anderson, R. M. (2000). The problem with compliance in diabetes. JAMA: The Journal of the American Medical Association,...
  • Funnell, M. M, & Anderson, R. M. (2002). Working toward the next generation of diabetes self-management education. American Journal of...
  • Funnell, M. M., & Anderson, R. M. (2004). Empowerment and selfmanagement of diabetes, Clin. Diabetes, 22(3), 123–127. https://doi.org/10.2337/diaclin.22.3.123
  • Gomes, L. C., Coelho, A. C. M., Santos Gomides, D., Foss-Freitas, M. C., Foss, M. C., & Pace, A. E. (2017). Contribution of family social...
  • Greene, J. A., Choudhry, N. K., Kilabuk, E., & Shrank, W. H. (2011). Online social networking by patients with diabetes: a qualitative...
  • Grigsby, A. B., Anderson, R. J., Freedland, K. E., Clouse, R. E., & Lustman, P. J. (2002). Prevalence of anxiety in adults with diabetes:...
  • Gritsenko, V. (2016). Interaction on online forums and group communication: A case study of an IT support community. Procedia, Social and...
  • Ha, J. F., & Longnecker, N. (2010). Doctor-patient communication: a review. The Ochsner Journal, 10(1), 38–43. Retrieved from: http://www.ochsnerjournal.org/content/och-jnl/10/1/38.full.pdf
  • Haluza, D., Naszay, M., Stockinger, A., & Jungwirth, D. (2017). Digital natives versus digital immigrants: Influence of online health...
  • Henrdon, J., Pollick, K., Funnell, M. M., & Anderson, R. M. (2004). Continuing concerns, new challenges, and next steps in physician-patient...
  • Herrero, N., Mas-Manchón, L., & Guerrero-Solé, F. (2019). Do online support groups influence the well-being of patients with diabetes?...
  • Herrero, N., Guerrero-Solé, F., & Mas-Manchón, L. (2021). Participation of patients with type 2 diabetes in online support groups is correlated...
  • Holt, R. I. G., de Groot, M., & Golden, S. H. (2014). Diabetes and depression. Current Diabetes Reports, 14(6), 491. https://doi.org/10.1007/s11892-014-0491-3
  • Hootsuite Inc. (n.d.). The global state of digital in 2019. Hootsuite.Com. Retrieved from https://hootsuite.com/resources/digital-in-2019
  • Howard, P. E., Rainie, L., & Jones, S. (2001). Days and nights on the Internet: The impact of a diffusing technology. American Behavioral...
  • Joensen, L. E., Almdal, T. P., & Willaing, I. (2016). Associations between patient characteristics, social relations, diabetes management,...
  • Johnston, A. C., Worrell, J. L., Di Gangi, P. M., & Wasko, M. (2013). Online health communities: An assessment of the influence of participation...
  • Jucks, R., & Thon, F. M. (2017). Better to have many opinions than one from an expert? Social validation by one trustworthy source versus...
  • Kimmerle, J., Bientzle, M., & Cress, U. (2014). Personal experiences and emotionality in health-related knowledge exchange in Internet...
  • King, H., Aubert, R. E., & Herman, W. H. (1998). Global burden of diabetes, 1995-2025: prevalence, numerical estimates, and projections....
  • Landqvist, M. (2016). Sense and sensibility–online forums as epistemic arenas. Discourse, Context & Media, 13, 98–105. https://doi.org/10.1016/j.dcm.2016.05.007
  • Lazer, D. M. J., Baum, M. A., Benkler, Y., Berinsky, A. J., Greenhill, K. M., Menczer, F., Metzger, M. J., Nyhan, B., Pennycook, G., Rothschild,...
  • Lee, A. A., Piette, J. D., Heisler, M., & Rosland, A.-M. (2018). Diabetes distress and glycemic control: The buffering effect of autonomy...
  • Leimeister, J. M., & Krcmar, H. (2005). Evaluation of a systematic design for a virtual patient community. Journal of Computer-Mediated...
  • Lo, B., & Parham, L. (2010). The Impact of Web 2. 0 on the Doctor-Patient Relationship. The Journal of Law, Medicine & Ethics, 38(1)....
  • Loader, B. D., Muncer, S., Burrows, R., Pleace, N., & Nettleton, S. (2002). Medicine on the line? Computer-mediated social support and...
  • Lupton, D. (2013). The digitally engaged patient: Self-monitoring and self-care in the digital health era. Social Theory & Health: STH,...
  • Makoul, G., Zick, A. B., Aakhus, M., Neely, K. J., & Roemer, P. E. (2010). Using an online forum to encourage reflection about difficult...
  • McKenna, R. J., Wellisch, D., & Fawzy, R. I. (1995). Rehabilitation and supportive care of the cancer patient (G. P. Murphy, W. J. Lawrence,...
  • McPherson, M., Smith-Lovin, L., & Cook, J. M. (2001). Birds of a feather: Homophily in social networks. Annual Review of Sociology, 27(1),...
  • Members, A. F., Rydén, L., Grant, P. J., Anker, S. D., Berne, C., & Cosentino, F. (2013). ESC Guidelines on diabetes, pre-diabetes, and...
  • Mezuk, B., Eaton, W. W., Albrecht, S., & Golden, S. H. (2008). Depression and type 2 diabetes over the lifespan: a meta-analysis. Diabetes...
  • Nicolucci, A., Kovacs Burns, K., Holt, R. I., Comaschi, M., Hermanns, N., & Ishii, H. (2013). Diabetes Attitudes, Wishes and Needs second...
  • Nieuwboer, C. C., Fukkink, R. G., & Hermanns, J. M. A. (2013). Peer and professional parenting support on the Internet: a systematic review....
  • O’Connor, C., & Murphy, M. (2020). Going viral: doctors must tackle fake news in the covid-19 pandemic. BMJ (Clinical Research Ed.), 369,...
  • Pal, K., Dack, C., Ross, J., Michie, S., May, C., Stevenson, F., Farmer, A., Yardley, L., Barnard, M., & Murray, E. (2018). Digital health...
  • Peng, S., Wang, G., & Xie, D. (2017). Social influence analysis in social networking big data: Opportunities and challenges. IEEE Network,...
  • Peng, S., Yang, A., Cao, L., Yu, S., & Xie, D. (2017). Social influence modeling using information theory in mobile social networks. Information...
  • Petty, R. E., & Cacioppo, J. T. (1986). Message elaboration versus peripheral cues. In Communication and persuasion (pp. 1986 141–172)....
  • Peyrot, M. F., & McMurry, J. F. (1992). Stress buffering and glycemic control: the role of coping styles. Diabetes Care, 15(7). https://doi.org/10.2337/diacare.15.7.842
  • Pimouguet, C., Le Goff, M., Thiébaut, R., Dartigues, J. F., & Helmer, C. (2011). Effectiveness of disease-management programs for improving...
  • Pintaudi, B., Lucisano, G., Gentile, S., Bulotta, A., Skovlund, S. E., Vespasiani, G., Rossi, M. C., Nicolucci, A., & BENCH-D Study Group....
  • Polonsky, W. H., Fisher, L., Earles, J., Dudl, R. J., Lees, J., Mullan, J., & Jackson, R. A. (2005). Assessing psychosocial distress in...
  • Preece, J. (2000). Online communities: designing usability, supporting sociability. Industrial Management & Data Systems, 100(9). https://doi.org/10.1108/imds.2000.100.9.459.3
  • Rains, S. A., & Keating, D. M. (2015). Health blogging: An examination of the outcomes associated with making public, written disclosures...
  • Rathmann, W., Kuß, O., Anderson, D., Busch, S., Hahn, M., Engelhard, J., Zou, M., & Kostev, K. (2018). Increased depression symptom score...
  • Reifegerste, D., Wasgien, K., & Hagen, L. M. (2017). Online social support for obese adults: Exploring the role of forum activity. International...
  • Ridings, C. M., Gefen, D., & Arinze, B. (2002). Some antecedents and effects of trust in virtual communities. Journal of Strategic Information...
  • Roffeei, S. H. M., Abdullah, N., & Basar, S. K. R. (2015). Seeking social support on facebook for children with autism spectrum disorders...
  • Santana, S., Lausen, B., Bujnowska-Fedak, M., Chronaki, C., Kummervold, P. E., Rasmussen, J., & Sorensen, T. (2010). Online communication...
  • Scheer, L. K., & Stern, L. W. (1992). The effect of influence type and performance outcomes on attitude toward the influencer. JMR, Journal...
  • Shu, K., & Liu, H. (2019). Detecting fake news on social media. Synthesis Lectures on Data Mining and Knowledge Discovery, 11(3), 1–129....
  • Slater, M. D. (2015). Reinforcing Spirals Model: Conceptualizing the relationship between media content exposure and the development and maintenance...
  • Smithson, J., Sharkey, S., Hewis, E., Jones, R., Emmens, T., Ford, T., & Owens, C. (2011). Problem presentation and responses on an online...
  • Spiegel, D., Bloom, J. R., Kraemer, H. C., & Gottheil, E. (1994). Effect of psychosocial treatment on survival of patients with metastatic...
  • Stellefson, M., Paige, S., Apperson, A., & Spratt, S. (2019). Social media content analysis of public diabetes Facebook groups. Journal...
  • Swan, M. (2012). Health 2050: The realization of personalized medicine through crowdsourcing, the quantified self, and the participatory biocitizen....
  • Taylor, S. E. (2017). Health Psychology (10th ed.). McGraw-Hill Education.
  • Thorne, S. E., & Paterson, B. L. (2001). Health care professional support for self-care management in chronic illness: insights from diabetes...
  • van Zanten, M., Boulet, J. R., McKinley, D. W., DeChamplain, A., & Jobe, A. C. (2007). Assessing the communication and interpersonal skills...
  • Waszak, P. M., Kasprzycka-Waszak, W., & Kubanek, A. (2018). The spread of medical fake news in social media – The pilot quantitative study....
  • Weiner, J. P. (2012). Doctor-patient communication in the e-health era. Israel Journal of Health Policy Research, 1(1), 33. https://doi.org/10.1186/2045-4015-1-33
  • Weitzman, E. R., Cole, E., Kaci, L., & Mandl, K. D. (2011). Social but safe? Quality and safety of diabetes-related online social networks....
  • White, M., & Dorman, S. M. (2001). Receiving social support online: implications for health education. Health Education Research, 16(6),...
  • Wild, S., Roglic, G., Green, A., Sicree, R., & King, H. (2004). Global prevalence of diabetes: estimates for the year 2000 and projections...
  • Wilson, K. S., DeRue, D. S., Matta, F. K., Howe, M., & Conlon, D. E. (2016). Personality similarity in negotiations: Testing the dyadic...
  • Wright, K. (2002). Social support within an on-line cancer community: An assessment of emotional support, perceptions of advantages and disadvantages,...
  • Zhu, Z., Su, J., & Kong, L. (2015). Measuring influence in online social network based on the user-content bipartite graph. Computers...