Do online support groups influence the well-being of patients with diabetes?

• Noelia Herrero ^[1] ; Lluís Mas-Manchón ^[1] ; Frederic Guerrero-Solé ^[1]
  1. [1] Universitat Pompeu Fabra

     Universitat Pompeu Fabra

     Barcelona, España

     
• Localización: El profesional de la información, ISSN-e 1699-2407, ISSN 1386-6710, Vol. 28, Nº 2, 2019 (Ejemplar dedicado a: Información y comunicación biomédica)
• Idioma: inglés
• DOI: 10.3145/epi.2019.mar.09
• Enlaces
  • Texto completo
• Dialnet Métricas: 2 Citas
• Resumen

  • Diabetes is one of the most challenging long-term diseases (LTD) nowadays. Diabetes is associated with dietary restrictions, medical treatments and a strict life style, and has important emotional implications. The aim of this study is to analyze the impact of participating in online support groups (OSG) and participants’ emotional well-being, social support, self-esteem and motivation. An online survey was disseminated in online forums about diabetes, in Spanish (N = 344). Results show that participating in OSGs has a significant influence on the four variables analyzed. However, the direction of this influence depends on participants’ type of diabetes. Participating in OSG is associated with an increase in self-reported social support and motivation for type 2 patients with diabetes, while it is associated with a decrease of both variables for type 1 patients. No differences were observed for emotional well-being and self-esteem. These results have direct implications for both people with type 1 and 2 diabetes and medical professionals in managing online communications more effectively.

• Referencias bibliográficas
  • Agrawal, Sungeeta; Gensure, Robert (2018). “Commentary on the impact of obesity on pediatric diabetes”. Clinical therapeutics, v. 40, n. 10,...
  • Al-Mamun, Mohammad; Ibrahim, Hamza, M.; Turin, Tanvir-Chowdhury (2015). “Social media in communicating health information: An analysis of...
  • Anderson, Ryan J.; Freedland, Kenneth E.; Clouse, Ray L.; Lustman, Patrick J. (2001). “The prevalence of comorbid depression in adults with...
  • Baddeley, Michelle (2010). “Herding, social influence and economic decision-making: Socio-psychological and neuroscientific analyses”. Philosophical...
  • Bakshy, Eytan; Rosenn, Itamar; Marlow, Cameron; Adamic, Lada (2012). “The role of social networks in information diffusion”. In: Proceedings...
  • Balkhi, Amanda M.; Reid, Adam M.; McNamara, Joseph P. H.; Geffken, Gary R. (2014). “The diabetes online community: the importance of forum...
  • Baumeister, Roy F.; Leary, Mark R. (2017). “The need to belong: Desire for interpersonal attachments as a fundamental human motivation”. In:...
  • Boneva, Bonka S.; Quinn, Amy; Kraut, Robert; Kiesler, Sara; Shklovski, Irina (2006). “Teenage communication in the instant messaging era”....
  • Castellacci, Fulvio; Tveito, Vegard (2018). “Internet use and well-being: A survey and a theoretical framework”. Research policy, v. 47, n....
  • Chen, Wei-Che; Lee, Chun-Chua; Chien, Ming-Nan; Liu, Sung-Chen; Wang, Chao-Hung; Yang, Wei-Shiung (2018). “Blood glucose management of type...
  • Christakis, Nicholas A.; Fowler, James H. (2009). Connected: The surprising power of our social networks and how they shape our lives. USA:...
  • Clark, Marie (2008). “Diabetes self-management education: a review of published studies”. Primary care diabetes, v. 2, n. 3, pp. 113-120....
  • Cobb, Sidney (1976). “Social support as a moderator of life stress”. Psychosomatic medicine, v. 38, n. 5, pp. 300-314. https://doi.org/10.1097/00006842-197609000-00003
  • Cook-Cottone, Catherine P.; Guyker, Wendy M. (2014). “The Mindful self-care scale: Self-care as a tool to promote physical, emotional, and...
  • Costa-Sánchez, Carmen; Míguez-González, María-Isabel (2018). “Use of social media for health education and corporate communication of hospitals”....
  • Costanza, Robert S.; Derlega, Valerian J.; Winstead, Barbara A. (1988). “Positive and negative forms of social support: Effects of conversational...
  • Dupuy, Harold J. (1978). “General well-being schedule”. PsycTests dataset. https://doi.org/10.1037/t04083-000
  • Facebook Newsroom. Stats. https://newsroom.fb.com/company-info
  • Fazio, Anthony F. (1977). “A concurrent validational study of the NCHS General well-being schedule”. PsycExtra dataset [Internet]. American...
  • Ford, Marvella E.; Tilley, Barbara C.; McDonald, Patricia E. (1998). “Social support among African-American adults with diabetes. Part 1:...
  • Giménez-Pérez, Gabriel; Recasens, Assumpta; Simó, Olga; Aguas, Teresa; Suárez, Ana; Vila, Maria; Castells, Ignasi (2016). “Use of communication...
  • Grande, Gesine E.; Myers, Lynn B.; Sutton, Stephen R. (2006). “How do patients who participate in cancer support groups differ from those...
  • Greene, Jeremy A.; Choudhry, Niteesh K.; Kilabuk, Elaine; Shrank, William H. (2011). “Online social networking by patients with diabetes:...
  • Grigsby, Allison B.; Anderson, Ryan J.; Freedland, Kenneth E.; Clouse, Ray E.; Lustman, Patrick J. (2002). “Prevalence of anxiety in adults...
  • Holt, Richard I. G.; De-Groot, Mary; Hill-Golden, Sherita (2014). “Diabetes and depression”. Current diabetes reports, v. 14, n. 6, pp. 491....
  • International Diabetes Federation (2017). Types of diabetes. https://www.idf.org/aboutdiabetes/what-is-diabetes.html
  • Joensen, Lene E.; Almdal, Thomas P.; Willaing, Ingrid (2016). “Associations between patient characteristics, social relations, diabetes management,...
  • Kahneman, Daniel; Deaton, Angus (2010). “High income improves evaluation of life but not emotional well-being”. In: Procs of the National...
  • Kelly, Laura; Jenkinson, Crispin; Ziebland, Sue (2013). “Measuring the effects of online health information for patients: Item generation...
  • Kimmerle, Joachim; Bientzle, Martina; Cress, Ulrike (2014). “Personal experiences and emotionality in health-related knowledge exchange in...
  • Konrath, Sara H. (2014). “Self-esteem, culturally defined”. Cultural sociology of mental illness: An A-to-Z guide. Sage reference. https://doi.org/10.4135/9781483346342.n286
  • Landqvist, Mats (2016). “Sense and sensibility–online forums as epistemic arenas”. Discourse, context & media, v. 13, pp. 98-105. https://doi.org/10.1016/j.dcm.2016.05.007
  • Leimeister, Jan-Marco; Krcmar, Helmut (2005). “Evaluation of a systematic design for a virtual patient community”. Journal of computer-mediated...
  • Lin, Keke; Park, Chang; Li, Mingzi; Wang, Xiudong; Li, Xiushu; Li, Wei; Quinn, Laurie (2017). “Effects of depression, diabetes distress, diabetes...
  • Lyubomirsky, Sonja; Lepper, Heidi S. (1999). “A measure of subjective happiness: Preliminary reliability and construct validation”. Social...
  • Makoul, Gregory; Zick, Amanda B.; Aakhus, Mark; Neely, Kathy J.; Roemer, Phillip E. (2010). “Using an online forum to encourage reflection...
  • McClelland, David C. (1987). Human motivation. CUP Archive. ISBN: 978 0 521369510
  • McDowell, Ian (2006). Measuring health: a guide to rating scales and questionnaires. USA: Oxford University Press. ISBN: 978 0 195165678
  • Nicolucci, Antonio; Burns, Katharina-Kovacs; Holt, Richard I.; Comaschi, Marco; Hermanns, Norbert; Ishii, Hitoshi; Kokoszka, Andrzej; Pouwer,...
  • Nieuwboer, Christa C.; Fukkink, Ruben G.; Hermanns, Jo M. A. (2013). “Peer and professional parenting support on the internet: a systematic...
  • Pintaudi, Basilio; Lucisano, Giuseppe; Gentile, Sandro; Bulotta, Angela; Skovlund, Soren E.; Vespasiani, Giacomo; Rossi, Maria C.; Nicolucci,...
  • Polonsky, William H.; Fisher, Lawrence; Earles, Jay; Dudl, R. James; Lees, Joel; Mullan, Joseph; Jackson, Richard A. (2005). “Assessing psychosocial...
  • Rathmann, Wolfgang; Kuss, Oliver; Anderson, Dörte; Busch, Stefan; Hahn, Michael; Engelhard, Johanna; Zou, Ming; Kostev, Karel (2018). “Increased...
  • Reifegerste, Doreen; Wasgien, Katrin; Hagen, Lutz M. (2017). “Online social support for obese adults: Exploring the role of forum activity”....
  • Ridings, Catherine M.; Gefen, David; Arinze, Bay (2002). “Some antecedents and effects of trust in virtual communities”. The journal of strategic...
  • Rosenberg, Morris (1965). “Rosenberg self-esteem scale (RSE)”. Acceptance and commitment therapy. Measures package, v. 61, n. 52. https://doi.org/10.1037/t01038-000
  • Smithson, Janet; Sharkey, Siobhan; Hewis, Elaine; Jones, Ray; Emmens, Tobit; Ford, Tamsin; Owens, Christabel (2011). “Problem presentation...
  • Spiegel, David; Kraemer, Helena C.; Bloom, Joan R.; Gottheil, Ellen (1989). “Effect of psychosocial treatment on survival of patients with...
  • Stevens, Michael J.; Duttlinger, Jorie E. (1998). “Correlates of participation in a breast cancer support group”. Journal of psychosomatic...
  • Suziedelyte, Agne (2012). “How does searching for health information on the internet affect individuals’ demand for health care services?”....
  • Thorne, Sally E.; Paterson Barbara L. (2001). “Health care professional support for self-care management in chronic illness: insights from...
  • Vučić-Lovrenčić, Marijana; Pibernik-Okanović, Mirjana (2018). “Longitudinal associations between biomarkers of inflammation and changes in...
  • Wardian, Jana L.; Tate, Joshua; Folaron, Irene; Graybill, Sky; True, Mark; Sauerwein, Tom (2018). “Who’s distressed? A comparison of diabetes-related...
  • White, Marsha; Dorman, Steve M. (2001). “Receiving social support online: implications for health education”. Health education research, v....
  • Wild, Sarah; Roglic, Gojka; Green, Anders; Sicree, Richard; King, Hilary (2004). “Global prevalence of diabetes: estimates for the year 2000...
  • Wilson, Kelly-Schwind; DeRue, D. Scott; Matta, Fadel K.; Howe, Michael; Conlon, Donald E. (2016). “Personality similarity in negotiations:...
  • World Health Organization (1999). Definition, diagnosis and classification of diabetes mellitus and its complications: report of a WHO consultation....
  • Wright, Kevin (2002). “Social support within an on-line cancer community: An assessment of emotional support, perceptions of advantages and...
  • Zimmet, Paul Z. (2011). “The growing pandemic of type 2 diabetes: a crucial need for prevention and improved detection”. Medicographia, v....