Autodeterminación de las personas con discapacidad intelectual como objetivo educativo y derecho básico: estado de la cuestión

• Arellano Torres, Araceli ^[1] ; Peralta López, Feli ^[1]
  1. [1] Universidad de Navarra

     Universidad de Navarra

     Pamplona, España

     
• Localización: Revista Española de Discapacidad (REDIS), ISSN-e 2340-5104, Vol. 1, Nº. 1, 2013, págs. 97-117
• Idioma: español
• DOI: 10.5569/2340-5104.01.01.05
• Títulos paralelos:
  • Self-determination of individuals with intellectual disability as an educational goal and basic right: The status of the issue
• Enlaces
  • Texto completo (pdf)
• Dialnet Métricas: 13 Citas
• Resumen
  • español

    Los resultados de la investigación sugieren que la autodeterminación es una de las variables que determina, en parte, la calidad de vida de las personas con discapacidad intelectual y su reconocimiento como miembros de pleno derecho. Este artículo presenta una síntesis de las principales ideas acerca de este constructo: factores que posibilitan el origen y desarrollo de este movimiento, modelos conceptuales, instrumentos de evaluación y sugerencias para la intervención. Para ello, se ha realizado una exhaustiva revisión de la literatura más significativa al respecto. Los esfuerzos dirigidos a promover este derecho básico nos permiten afirmar que la autodeterminación ha dejado de ser un deseo para pasar a ser una realidad.

  • English

    Results of research suggest that self-determination is one of the variables that determine, in part, the quality of life of people with intellectual disabilities and their recognition as equal members of society. This paper presents a summary of the main ideas about this construct: factors that enable the origin and development of this movement, conceptual models, assessment tools and suggestions for intervention. To do this, we have performed an exhaustive review of the literature. Efforts to promote this basic right let us to state that self-determination is no longer a wish but it has become a reality.

• Referencias bibliográficas
  • Abery, B. y Stancliffe, R.J. (2003a): “A tripartite- ecological theory of self-determination”, en Wehmeyer, M.L. et al. (coords.), Theory...
  • Abery, B. (2003b): “An ecological theory of self- determination: Theoretical foundations”, en Wehmeyer, M.L. et al. (coords.), Theory in Self-...
  • Abery, B. y Zajac, R. (1996): “Self-determination as a goal of early childhood and elementary education”, en Sands, D.J. y Wehmeyer, M.L....
  • Abery, B., et al. (2000): Minnesota Self- determination Scales, Minnesota: Institute on Community Integration of the University of Minnesota.
  • Abery, B., et al. (1995): “Evaluating a multicomponent program for enhancing the self-determination of youth with disabilities”, Intervention...
  • Abery, B. et al. (1994): Self-determination for Youth with Disabilities. A Family Education Curriculum, Minnesota: Institute on Community...
  • Agran, M., et al. (2008): “Promoting student active classroom participation skills through instruction to promote self-regulated learning...
  • Algozzine, B., et al. (2001): “Effects on interventions to promote self-determination for individuals with disabilities”, Review of Educational...
  • American Association on Intellectual and Developmental Disabilities (2010): Intellectual Disability: Definition, Classification and Systems...
  • Arellano, A. (2012): “El contexto familiar como apoyo a la autodeterminación de las personas con discapacidad intelectual. Estudio sobre sus...
  • Arteta, R. et al. (2012): Planificación centrada en la persona. Una guía práctica (en línea), , acceso 3 de noviembre de 2012.
  • ASPRONA (2002): La autodeterminación de las personas con discapacidad intelectual, Madrid: FEAPS.
  • AZTEGUI (2009): Autodeterminación. Guía para el personal de apoyo, Madrid: FEAPS.
  • Brotherson, M.J., et al. (2008): “Understanding self-determination and families of young children with disabilities in home environments”,...
  • Brown, I., et al. (2007): “Person-centered and family-centered supports”, en Brown, I. y Percy M. (coords.), A Comprehensive Guide to Intellectual...
  • Calkins, C. et al. (2011): “Introduction to the special issue on scaling up efforts to promote the self-determination of people with developmental...
  • Chambers, C.R., et al. (2007): “Self-determination: What do we know? Where do we go?”, Exceptionality, 15 (1): 3-15.
  • Cobb, B., et al. (2009): “Self-determination for students with disabilities: A narrative metasynthesis”, Career Development for Exceptional...
  • Confederación Española de Organizaciones a favor de las Personas con Discapacidad Intelectual (2012): Manifiesto por la plena ciudadanía de...
  • Cook, C.C., et al. (2007): “Children with disabilities: Opportunities in the home environment”, Implications, 5 (12): 1-6. Davis, S. y Wehmeyer,...
  • Deci, E.L. y Chandler, C.L. (1986): “The importance of motivation for the future of the LD field”, Journal of Learning Disabilites, 23 (1):...
  • Doss, B. y Hatcher, B. (1996): “Self-determination as a family affair: Parents’ perspectives on self- determination”, en Sands, D.J. y Wehmeyer, M.L....
  • Dykens, E. (2006): “Toward a positive psychology of mental retardation”, American Journal of Orthopsychiatry, 76 (2): 185-193.
  • Erwin, E.J., et al. (2009): “How to promote self-determination for young children with disabilities: Evidenced-based strategies for early...
  • Fetterman, D.M. (1996): “Empowerment evaluation: An introduction to theory and practice”, en Fetterman, D.M. et al. (coords.), Empowerment...
  • Field, S. y Hoffman, A. (2002): “Preparing youth to exercise self-determination: Quality indicators of school environments that promote the...
  • Field, S. (1996): Steps to Self-determination: A Curriculum to Help Adolescents Learn to Achieve their Goals. Instructor’s Guide, Austin:...
  • Field, S., et al. (1998a): A Practical Guide for Teaching Self-determination, Reston: The Council for Exceptional Children.
  • Field, S., et al. (1998b): Self-determination Strategies for Adolescents in Transition, Austin: Pro-Ed.
  • Finlay, W. y Lyons, E. (2001): “Methodological issues in interviewing and using self-report questionnaires with people with mental retardation”,...
  • Gómez-Vela, M., et al. (2012): “Assessment of the self-determination of Spanish students with intellectual disabilities and other educational...
  • Heller, T., et al. (2011): “Self-determination across the life span: Issues and gaps”, Exceptionality. A Special Education Journal, 19 (1):...
  • Hoffman, A. y Field, S. (2006): Steps to Self- determination. A Curriculum to Help Adolescents Learn to Achieve their Goals, 2ª ed., Austin:...
  • Hoffman, A., et al. (2004a): Self-determination Assessment Battery User’s Guide, 2ª ed., Detroit: Wayne State University.
  • Hoffman, A. et al. (2004b): Self-Determination Assessment Battery User’s Guide, 3ª ed., Detroit: Center for Self-Determination and Transition,...
  • Illán, N. et al. (2005): Lo que dicen las familias. 12 claves para la autonomía de las personas con síndrome de Down, Madrid: FEISD; Obra...
  • Karvonen, M., et al. (2004): “Putting self- determination into practice”, Exceptional Children, 71 (1): 23-41.
  • Kim, K. y Turnbull, A. (2004): “Transition to adulthood for students with severe intellectual disabilities: Shifting toward person-family...
  • Leal, L. (1999): Un enfoque de la discapacidad centrado en la familia, Madrid: Confederación Española de Organizaciones en favor de las Personas...
  • Lee, Y. et al. (2012): “Examining individual and instruction-related predictors of the self- determination of students with disabilities:...
  • Linley, P.A., et al. (2006): “Positive psychology: Past, present, and (possible) future”, The Journal of Positive Psychology, 1 (1): 3-16.
  • Malik, P.B., et al. (1991): “Interviewing young adults with mental retardation: A seldom used research method”, Therapeutic Recreation Journal,...
  • Martin, J.E. y Marshall, L.H. (1997): “Choice making: Description of a model project”, en Agran, M. (coord.), Student Directed Learning. Teaching...
  • Martin, J.E. (1996): “ChoiceMaker: Infusing self- determination instruction into the IEP and transition process”, en Sands, D. J. y Wehmeyer,...
  • Matuszewski, J. (1996): “Helping Tom learn to do for himself… with help”, en Powers, L. et al. (coords.), Promoting Self-competence in Children...
  • Mithaug, D.E. (2003): “Adjusting beliefs about self-determination”, en Wehmeyer, M.L. et al. (coords.), Theory in Self-determination. Foundations...
  • Mithaug, D.E., et al. (1998): “The Self-determined Learning Model of Instruction. Engaging students to solve their learning problems”, en...
  • Nisbet, J. (2000): “Transformando los sistemas de servicios educativos y humanos hacia la autodeterminación: la experiencia de New Hampshire”,...
  • Nota, L., et al. (2007): “Self-determination, social abilities and the quality of life of people with intellectual disability”, Journal of...
  • OMS (2001): Clasificación Internacional del Funcionamiento, de la Discapacidad y de la Salud, Madrid: Imserso.
  • Palmer, S.B. y Wehmeyer, M.L. (2002): A Parent’s Guide to the Self-determined Learning Model for Early Elementary Students, Kansas: Beach...
  • Peralta, F. (2011): “Taller para mejorar la autodeterminación de los hermanos”, en Lizasoáin, O. (coord.), Hermanos de personas con discapacidad...
  • Peralta, F. (2008): “Educar en autodeterminación: profesores y padres como principales agentes educativos”, Educación y Diversidad. Anuario...
  • Peralta, F. (2006): “La evaluación de la conducta autodeterminada desde la perspectiva del empowerment evaluation: revisión de instrumentos...
  • Peralta, F. y Arellano, A. (2010): “Familia y discapacidad. Una perspectiva teórico-aplicada del Enfoque Centrado en la Familia para promover...
  • Peralta, F., et al. (coords.) (2006): Podemos hacer oír su voz: claves para promover la conducta autodeterminada, Málaga: Ediciones Aljibe.
  • Peralta, F., et al. (2005): “Creencias y conocimientos de los profesores acerca de la conducta autodeterminada en personas con discapacidad...
  • Ponce, A. (2010): Formación en autodeterminación para familias, Madrid: Confederación Española de Organizaciones en favor de las Personas...
  • Poston, D., et al. (2003): “A qualitative study on family quality of life”, Mental Retardation, 41 (5): 313-328.
  • Powers, L.E., et al. (1996). “Take Charge: A model for promoting self-determination among adolescents with challenges”, en Powers, L.E....
  • Ryan, R.M. y Deci, E.L. (coords.) (2001): Handbook of Self-determination Research, Rochester: University of Rochester Press.
  • Schalock, R.L. (2006): “La calidad de vida como agente del cambio: oportunidades y retos”, en Verdugo, M.A. y Jordán de Urríes, F.B. (coords.),...
  • Schalock, R.L. (2000): “Three decades of quality of life”, en Wehmeyer, M.L. y Patton, J.R. (coords.), Mental Retardation in the 21st century,...
  • Schalock, R.L. y Verdugo, M.A. (2010): Calidad de vida: Manual para profesionales de la educación, salud y servicios sociales, Madrid: Alianza.
  • Schalock, R.L., et al., (2010): “Quality of life model development and use in the field of intellectual disability”, en Kober R. (coord.),...
  • Schalock, R.L. et al. (2005): “Cross-cultural study of quality of life indicators”, American Journal on Mental Retardation, 110 (4), 298-311.
  • Schalock, R.L., et al. (2002): “Conceptualization, measurement, and application of quality of life for persons with intellectual disabilities:...
  • Seligman, M.E.P. y Csikszentmihalyi, M. (2000): “Positive psychology: An introduction”, American Psychologist, 55 (1): 5-14.
  • Turnbull, A.P. y Turnbull, H.R. (2001): “Self- determination for individuals with significant cognitive disabilities and their families”,...
  • Turnbull, A.P. (2000): “Fostering family-professional partnerships”, en Snell, M.E. y Brown, F. (coords.), Instruction of Students with Severe...
  • Turnbull, A.P. (1996): “Group action planning as a strategy for providing comprehensive family support”, en Koegel, L.K. y Dunlap, G. (coords.),...
  • Turnbull, A.P., et al. (2006): Families, Professionals, and Exceptionality: Positive Outcomes through Partnerships and Trust, 5ª ed., New...
  • Verdugo, M.A. (ed.). (2006): Cómo mejorar la calidad de vida de las personas con discapacidad: instrumentos y estrategias de evaluación, Salamanca:...
  • Verdugo et al. (2009): Escala Integral. Evaluación objetiva y subjetiva de la calidad de vida, Madrid: CEPE.
  • Walker, H.M., et al. (2011): “A socio-ecological approach to promote self-determination”, Exceptionality. A Special Education Journal, 19...
  • Ward, M.J. y Kohler, P.D. (1996): “Teaching self- determination content and process”, en Powers, L.E. et al. (coords.), Promoting Self-competence...
  • Wehmeyer, M.L. (2009): “Autodeterminación y la tercera generación de prácticas de inclusión”, Revista de Educación, 349: 45-67.
  • Wehmeyer, M.L. (2005): “Self-determination and individuals with severe disabilities: Re-examining meanings and misinterpretations”, Research...
  • Wehmeyer, M.L. (2004): “Beyond self-determination: Causal agency theory”, Journal of Developmental and Physical Disabilities, 16 (4), 337-359.
  • Wehmeyer, M.L. (1999): “A functional model of self- determination: describing development and implementing instruction”, Focus on Autism and...
  • Wehmeyer, M.L. (1998): “Self-determination and individuals with significant disabilities: Examining meanings and misinterpretations”, Journal...
  • Wehmeyer, M.L. (1995): The Arc’s Self-determination Scale. Procedural Guidelines, Arlington: The Arc of the United States.
  • Wehmeyer, M.L. y Field, S. (2007): Self- determination: Instructional and Assessment Strategies, Thousand: Corwin Press.
  • Wehmeyer, M.L. y Ward, M.J. (1995): “The spirit of the IDEA mandate: Student involvement in transition planning”, Journal of the Association...
  • Wehmeyer, M.L., et al. (2011): “Personal self- determination and moderating variables that impact efforts to promote self-determination”,...
  • Wehmeyer, M.L., et al. (2009): “Self- determination”, en López, S.J. y Snyder, C.R. (coords.), Oxford Handbook of Positive Psychology, 2ª...
  • Wehmeyer, M.L., et al. (2008): “Self-determination and students with developmental disabilities”, en Parette, H.P. y Peterson-Karlan, G.R....
  • Wehmeyer, M.L., et al. (2006): Escala de autodeterminación ARC. Adaptación española de las versiones para adolescentes y adultos, Madrid:...
  • Wehmeyer, M.L., et al. (2002): Teaching Students with Mental Retardation. Providing Access to the General Curriculum, Baltimore: Paul H. Brookes...
  • Wehmeyer, M.L., et al. (2000a): “Promoting causal agency: The self-determined learning model of instruction”, Exceptional Children, 66, 430- 453.
  • Wehmeyer, M.L., et al. (2000b): “Riding the third wave: Self-determination and self-advocacy in the 21st century”, Focus in Autism and Other...
  • Wehmeyer, M.L., et al. (1998): A Teacher’s Guide to Implementing the Self-determined Learning Model of Instruction. Adolescent Version, Arlington:...
  • Wolman, J.M., et al. (1994): AIR Self- determination Scale and User Guide, Palo Alto: American Institutes for Research.
  • Wood, W.M. et al. (2005): “A review of self- determination interventions with individuals with severe disabilities”, Research and Practice...
  • Zulueta, A. y Peralta, F. (2008): “Percepciones de los padres acerca de la conducta autodeterminada de sus hijos con discapacidad intelectual”,...