La "carrera" de las personas que sufren de escleorosis múltiple: tres momentos clave. De la irrupción de la enfermedad al "trabajo biográfico"

• Autores: Séverine Colinet
• Localización: REIS: Revista Española de Investigaciones Sociológicas, ISSN 0210-5233, Nº 144, 2013, págs. 127-138
• Idioma: español
• DOI: 10.5477/cis/reis.144.127
• Enlaces
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• Resumen
  • español

    El objetivo de esta investigación es entender de qué manera se puede aplicar el concepto de «carrera» a una enfermedad crónica específi ca como es la esclerosis múltiple. Esta investigación se centra en las «carreras» según se habla en el Interaccionismo simbólico en sociología. La investigación cualitativa se basa en treinta entrevistas semi-directivas, cuatro entrevistas colectivas con personas afectadas de esclerosis múltiple en asociaciones y hospitales franceses, y en veintitrés observaciones realizadas durante un período de un año. Tres fases en las «carreras» de los sujetos ponen de manifi esto la llegada de la enfermedad: la irrupción de los síntomas, el anuncio del diagnóstico que corresponde a la confi rmación de la entrada en la enfermedad y que marca «un antes y un después de la enfermedad», y la elaboración del «trabajo biográfi co». Según la manera en cómo se vive y se entra en las «carreras» de la enfermedad, éstas serán más o menos complejas y diferentes, como también las formas de trayectorias biográficas

  • English

    The aim of this paper is to understand how the concept of ?career? can be applied to a specifi c chronic disease such as multiple sclerosis. This research is focused on ?careers? as the term is used in Symbolic Interactionism in Sociology. The qualitative research is based on thirty semi-directed interviews, four group interviews with people suffering from multiple sclerosis in French hospitals and associations, and twenty-three observations made over a one-year period. Three stages in the ?careers? of the subjects showed the onset of the disease: the start of the symptoms, the announcement of the diagnosis, which confi rms the entry into the disease (and defi ned life before and after the disease), and the preparation of the ?biographical work?. Depending on how one lives and enters into the ?careers? of the disease, such ?careers? will be more or less complex and different, as will also be the forms of biographical paths

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